Other Causes of Dementia

There are many different forms of dementia all caused by different diseases, conditions, or circumstances. It is said that between 5% and 15% of people living with dementia have a rare dementia. These all cause a unique and varied set of challenges including cognitive, motor and sensory challenges. The lack of awareness and understanding of rare dementias is widespread amongst society, a lot more can be done to educate people of these conditions and help provide the support and resources needed.

University College London runs a brilliant company called Rare Dementia Support to help raise awareness and support people living with rarer forms of dementia. You can find a link to their website below.

Rare Dementia Support

You can find links at the bottom of this page for more information about the rarer causes of dementia. Here is a list of some of the more rare dementias:

Atypical Alzheimer’s disease
— Frontal variant Alzheimer’s disease (fvAD)
— Posterior cortical atrophy (PCA)

CADASIL

Corticobasal syndrome (CBS)

Creutzfeldt–Jakob disease (CJD)

HIV-associated neurocognitive disorder (HAND)

Huntington’s disease

Logopenic aphasia

Normal pressure hydrocephalus (NPH)

Progressive supranuclear palsy (PSP)

Further resources

Together we learn - Rare Dementia Support

The Many Faces of Dementia - University College London

Rarer Types of Dementia - Alzheimers Research UK

Rare Dementia Support - The National Brain Appeal